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Is anyone else here on Spiro(nolactone)?


Patti Anne

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Is anyone else currently on spironolactone? If so, what dose are you taking? Any side effects with it? Specifically leg cramps at night?

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I was on it pre-GRS.  If you're having cramps, drink more water.  Lots.  Your body needs it.  Its bothersome at first with lots of bathroom calls but you will eventually adjust to it.  

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Oh, I forgot that I read you are a health care practitioner.  You might be able to consult with medical guides, although as you are aware its an off label use for us.  

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I know. I wasn't advising anyone to self-medicate. In fact, I'd discourage it, as it's a potassium sparing diuretic and reckless management could result in death. But for what it's worth, dosages, etc are easily accessible on the web.

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When I was on spiro (at a fairly typical dose, I gather), the biggest side-effect I has was constant dehydration.  Even drinking half a litre an hour was not enough to keep up with the rate I was peeing.  I didn't have cramps, but I did have dehydration headaches from time to time. 

 

After two years, I asked my doctor to switch me to cyproterone, which is much easier on the body.  I don't think we quite got the dosage stabilized: it felt like my T level was creeping up, though I didn't have lab tests often enough to confirm that.  It's a moot point now, being post-op.

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