High Prolactin Levels

[Guest Seanna]

I got a call from my endo this morning telling me that my latest blood work showed elevated prolactin levels. He wants me to skip my next E injection and get tested again, then come in to see him.

I was just wondering if anyone else here has had a similar experience? Is it something I should be worried about?

~Seanna

[Guest]

I got a call from my endo this morning telling me that my latest blood work showed elevated prolactin levels. He wants me to skip my next E injection and get tested again, then come in to see him.

I was just wondering if anyone else here has had a similar experience? Is it something I should be worried about?

~Seanna

I went through a bout of that. My hormones were all out of wack and I was sick. My labs showed I was in the first trimester of pregnancy. My prolactin was to the moon, but my other hormone levels were such that would not let me lactate.

The doctor I had at the time was a culture shock from my wonderful doctor that moved away. She and I never see eye to eye about much of anything. I agreed to and went for a scan. My brain and glands are fine. Her next and only solution was to try and slash out all estrogen for me. Not gonna happen! Catch you later... She has never had, or could ever have a vicious estrogen crash so my words of first hand experience fell on stoggy deaf ears.

I reasoned that testosterone is a bully to estrogen. I needed the boys to kick my prolactin's butt. Three weeks of zero Spironolactone they did just that. I made a b-line to my GP doctor. We did my labs and compared notes. My prolactin had dropped to normal young female levels and also he noticed my testosterone levels had become almost nil, far below female levels and was now back in range. I was cured having never missed a ml of estrogen.

He congratulated on my thinking, agreed to takings over prescribing my HRT on the promise that I not experiment on my own again. I now take half as much Spiro and all is well. That's good enough for me!

I am not prescribing this for you. I'm not a medical person nor have I ever theatrically portrayed on. Don't experiment and wizz your doctor off. He may hand you the door. This worked for me and e-crashes can be deadly if you ever get depressed or suicidal. Be well and be girl. Hug. JodyAnn

[VickySGV]

Unless the doctor is actually worried, (in which case he could hospitalize you) you should not be seriously worried. JodyAnn's story there can be pretty typical on the rise and fall of the hormone empire when we are getting started. Cis female hormone cycles cover a wide range, but our doctors are trying to keep us in a narrower range than they have due to our lack of "need" for the wide range. Each of us is different though and will process our hormones a bit different based on genetics and our hormone receptors. If the stuff is high, it means we are not using them which means the receptor cells don't want or cannot use what we are pushing their way. Give them a chance to calm down and they will take the load and work with it which is what we want.

[Guest Seanna]

Thank you for your responses! My biggest concern was that, through some quick Internet research, I found that HRT can cause something called a prolactinoma to develop in the brain, leading to higher levels of prolactin. It seems to be fairly uncommon, but still a concern. I'm guessing that's what he wants to check for. It's good to hear that this issue, as a whole, is not uncommon and could mean any number of things. Hopefully it just blows over, but I guess I'll have to wait and see.

~Seanna

[Guest]

If I may also add: Keep doing your own research of sound medical information. Keep a good dialogue going with your doctors. They are not proticularly wrong but many are on a learning curve just as we are. Providing them with documented useful information may help them be a little more bold in their approach. Hug. JodyAnn