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'quietly' optomistic...


Guest CariadsCarrot

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Guest CariadsCarrot

I wanted to share something awesome with you guys and girls that's been happening over the last few weeks.

I've been mute due to my disabilities for 2 years...it's actually the 2 year anniversary this month of the day I completely and finally lost my voice. Although I had speech therapy they thought there wasn't anything that could be done to help me.

Then a few weeks ago I started getting some worrying symptoms that one of my medications info leaflets warned to get checked out in the case of so I went to my GP about them. He said that I needed to come off the medication that I'd been on for years and then he said 'that medication can cause problems with your voice too'! Well how come no one told me THAT 2 years ago!!!!

So I stopped taken the medication and the symptoms went away...and although my voice hasn't completely come back I started being able to whisper louder. Then today I was talking to my sister and she said 'you know your voice has been almost a normal quiet pitch for the last 2 days'!

Tonight it's back to completely silent again as it always gets worse when my muscles get tired (for ALL my muscles to not work as well when I get tired is part of my disability) but I'm so excited. It seems like I might be able to speak again for the first time in 2 years!

Gabe

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Good for you Gabe, keep the faith and don't over do the voice. Those muscles have become weak due to inuse. Take your time and work with a speech therapist. Kathryn

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Guest Zandrogynous

That is wonderful news! I'm very excited and happy for you! Glad you found out what the problem was, better late than never. Its sad that so many "modern medications" have such awful side effects. I am a believer in natural cures myself, better all around in almost every situation in my opinion. Even besides an audable voice, I feel that you have a beautiful voice inside you, a spiritual

voice that can never be taken away, and that's something to be thankful for.

Best of luck and best wishes in getting your voice back

-Zandra

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Guest CariadsCarrot

Thank you all :D It's nice being able to come here and have you folks celebrate with me.

My throat muscles are not so much weak from disuse coz I have been exercising them the way the speech therapist taught me for the last year but ALL my muscles are very weak due to my disabilities and tend to become even weaker whenever I'm tired. That's what we thought was causing the speech loss until now.

Today I have no voice at all again and it's a bit disheartening but even if I can have a voice SOME of the time it's better than I've had the last 2 years and that's brilliant. If I can build on that and get it back full time even better!

My true wish is to be able to sing again. Even being able to speak a little the last couple of days I haven't been able to control or alter pitch at all but I'm hoping that will come as I work on it.

Hey, it always made me sad to think that when I start T I would never know what my true male voice would have sounded like...now maybe I will and that's an awesome thought!

Gabe

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Guest Elizabeth K

Gabe - your letters are so powerful to me! I too hope you hear that male voice soon! Oh what a glorious thing that would be.

Lizzy

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Gabe,

That is tremendous news!

I have a bit of history with vocal issues and surgeries etc, I was once required to be silent for 4 months, so I can truly empathize (to a degree)...

It is very hard to overstate the importance of one's ability to speak, most of us can only imagine the frustration that comes with mutism.

This is wonderful news, please know you are in my thoughts and prayers..

:) S

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Guest CariadsCarrot

Thank you Svenna.

It must have been tough having to keep quiet for 4 months. I couldn't do it on purpose. Even knowing I have no voice I still always keep trying to speak. It feels very helpless and vulnerable not being able to speak doesn't it.

How did you communicate when you weren't allowed to speak? Mostly people try to lip read me but when they can't I use a text to speech program on my phone.

Gabe

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Guest Gregg Jameson

HI Gabe!

Wow! How exciting! :D

I am so very happy for you!

Thanks so very much for sharing this wonderful news with all of us!

In celebration,

Brad

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Thank you Svenna.

It must have been tough having to keep quiet for 4 months. I couldn't do it on purpose. Even knowing I have no voice I still always keep trying to speak. It feels very helpless and vulnerable not being able to speak doesn't it.

How did you communicate when you weren't allowed to speak? Mostly people try to lip read me but when they can't I use a text to speech program on my phone.

Gabe

Gabe,

I used a magic marker and a large notebook to communicate with. I wasn't allowed to make a single sound, whispers were especially forbidden!

It was during my senior year of university studies, with a difficult double-major to finish and several recitals and major projects due.

It was a real drag, yep! But I learned a thing or two by just listening to people talk. Amazing the things that people say, really amazing things!

I ended a long-term relationship due to what I 'heard' while silent. That girl was 'poison', lol...

Hopefully, your situation will resolve favorably. That is my hope and prayer for you!

Love and such, Svenna

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Guest CariadsCarrot

I use a marker and paper with my grandmother who can't understand my text to speech thing too. It's more cumbersome to carry round than my phone though. It must have been so difficult getting through all that university stuff without being able to speak. The time I find it the toughest is with my kids coz they don't want to take the time and effort to let me communicate when it takes longer and is more difficult to understand than a conversation with most people. Also with my father who wont make any effort to understand me often unless I can speak audibly.

Yeah whispering is very bad for the throat but I get so frustrated that I do it anyway. I'm not a good patient and far too stubborn for my own good lol

You're right that you hear a lot and learn a lot when you aren't talking. I'm sorry it lead to a breakdown in a relationship for you.

Gabe

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Gabe I so hope that your voice comes back! Drives me mad when I discover that a Dr. failed to mention something serious about a medication. I've had a couple of issues with that but nothing as serious or traumatic as losing a voice

Since muscle strength is one of the big benefits of T maybe when you are able to get it it will really help your voice too. I have noticed though that I am having to completely relearn pitch and inflection. can't sing at all but hoping to relearn.

I'll be sending positive thoughts and prayers and hopes your way-you'd be surprised how often I do already.

Johnny

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Guest CariadsCarrot

Thank you Johnny, your thoughts and prayers mean so much.

Yeah I've wondered if T will help that too. So many things T is likely to do for me...such distant hopes of getting it any time soon!

I'll just have to go push my GP again.

I never really thought of having to re-learn ways of talking when T changes the voice. I hope you are able to learn to sing again.

I used to sing pretty much all the time. I hope I can again some day.

Gabe

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I use a marker and paper with my grandmother who can't understand my text to speech thing too. It's more cumbersome to carry round than my phone though. It must have been so difficult getting through all that university stuff without being able to speak. The time I find it the toughest is with my kids coz they don't want to take the time and effort to let me communicate when it takes longer and is more difficult to understand than a conversation with most people. Also with my father who wont make any effort to understand me often unless I can speak audibly.

Yeah whispering is very bad for the throat but I get so frustrated that I do it anyway. I'm not a good patient and far too stubborn for my own good lol

You're right that you hear a lot and learn a lot when you aren't talking. I'm sorry it lead to a breakdown in a relationship for you.

Gabe

Gabe,

People reacted in odd ways to my sudden and total inability to speak. Of course I needed to communicate with a LOT of people that last semester at University, and many people I had known for years and years were among that population. Even after reading my pre-made explanation about the problem with my vocal cords, people would ask questions and stand there waiting for me to SPEAK. I'd be busily scrawling out an answer to their initial question and they would begin to ramble out more and more questions, voice getting louder and louder, until I would finally show them another pre-made page that said in something like this inn big RED letters.

"Why are you raising your voice? I am not deaf. I can hear you just fine. Again,

I cannot SPEAK, so please, wait until I ANSWER your question before asking another. Thank you!'

Oddly, or maybe not so oddly, some people that I thought I was 'close' to actually began to avoid me while I was silent. I later confronted two of these 'fair-weather friends' and again, oddly, they both denied avoiding me. Fact was, though, that we hadn't communicated in months by the time I was free to speak again. The relationships never recovered and I lost track of them both shortly afterward...

Social stigma is a crazy thing. That was one of my first experiences with the phenomenon in my adult life...

Also, losing the gal I was with at the time was a BLESSING, though she did have an enormous wardrobe with a LOT of stuff that actually looked good on ME, lol...

Ah well, take the good with the bad, I guess! ;)

Hope your voice gets better than ever, and soon!

Love, Svenna

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Guest CariadsCarrot

I often have people act as though I must be deaf if I'm mute or refuse to speak to me too. Also the combination of being mute and being in a wheelchair convinces some people that I must be mentally deficient. At the time it can be upsetting and frustrating but usually by the time I'm out of the situation I'm laughing about it.

As far as friends go, luckily the few friends I have are very good with disability of various kinds. It must have been horrible to find that some people who you thought were friends could be put off being around you so easily.

Gabe

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